AOA at Global Genes Summit 2016

Aware of Angels was so honored to have portraits on display this year at the annual Global Genes Advocacy Summit. I was able to bring 12 of my Angels with me and the photos were a larger than life 48″x48″. I honestly was so excited (and a bit emotional:) to have them on display, raising awareness for these beautiful children and their rare diagnoses has been a goal since day 1. What a great opportunity this was to get them in front of hundreds of people.

I was also able to network with amazing people and connect with great organizations like the Mauli Ola Foundation http://www.mauliola.org/   Rare Science http://www.rarescience.org/rare-bear-program/  and Little Miss Hannah Foundation  http://littlemisshannah.org/ In a special collaboration with Rare Science, all of our Angels were sent an invitation to participate in the RARE bear army. I brought one home for my RARE Angel and several more of our Angels have been receiving theirs in the mail. This organization is dedicated to finding cures for rare disease. If you haven’t found them all ready look them up!

The Summit experience was very educational and I had an amazing time with some of my best rare friends! If you have the opportunity I recommend going. Until next time! Thank you so much Global Genes! https://globalgenes.org/

My Sillies