Calling on everyone!! 🙂 We have officially started a Crowdrise fundraiser for the next 30 days. We have families and children in over 15 united states and 3 countries that want us to come out for a photography session and to participate in our global awareness project this year! This will be somewhat low-key […]
This author has yet to write their bio.Meanwhile lets just say that we are proud Season contributed a whooping 83 entries.
Entries by Season
Ava: 5 years old Diagnosis: 1P36 Chromosome Deletion Syndrome USA
Ella Pauline Dignan-In Loving Memory Diagnosis: Dandy Walker Syndrome USA
We are thrilled to be collaborating with the Rare Genomes Project! If you are a patient or parent who had severe symptoms before the age of 13 I highly encourage you to reach out to them for a genetic testing opportunity. “The Rare Genomes Project aims to increase rare and undiagnosed families’ access to genomic […]
James: Age 3 Diagnosis: Adams-Oliver Syndrome USA