Ella Pauline Dignan-Dandy Walker Syndrome-In Loving Memory
Ella Pauline Dignan-In Loving Memory Diagnosis: Dandy Walker Syndrome USA
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Rare Genomes Project-Genetic Testing Opportunity
We are thrilled to be collaborating with the Rare Genomes Project! If you are a patient or parent who had severe symptoms before the age of 13 I highly encourage you to reach out to them for a genetic testing opportunity. “The Rare Genomes Project aims to increase rare and undiagnosed families’ access to genomic […]
James: Adams-Oliver Syndrome
James: Age 3 Diagnosis: Adams-Oliver Syndrome USA
New RARE Portrait Gallery at Recursion Pharmaceuticals
We are so thrilled and honored to have another RARE portrait gallery up! Recursion Pharmaceuticals has installed portraits of 18 RARE and Undiagnosed Angels in their new workspace. Employees wanted this installation to remind them everyday why they are doing what they are doing and who they are doing it for! It is motivating and […]
Stockton-Undiagnosed
Stockton: Age 2 Diagnosis: Undiagnosed USA
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