Randy Diagnosis: Ehlers-Danlos Syndrome type 9 (Occipital Horn Syndrome)
This author has yet to write their bio.Meanwhile lets just say that we are proud Season contributed a whooping 94 entries.
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A HUGE thank you to everyone who participated and supported Aware of Angels during this fundraiser and all other times! xoxo Calling on everyone!! 🙂 We have officially started a Crowdrise fundraiser for the next 30 days. We have families and children in over 15 united states and 3 countries that want us to come […]
Ava: 5 years old Diagnosis: 1P36 Chromosome Deletion Syndrome USA
Ella Pauline Dignan-In Loving Memory Diagnosis: Dandy Walker Syndrome USA
We are thrilled to be collaborating with the Rare Genomes Project! If you are a patient or parent who had severe symptoms before the age of 13 I highly encourage you to reach out to them for a genetic testing opportunity. “The Rare Genomes Project aims to increase rare and undiagnosed families’ access to genomic […]