Aware of Angels Archives - Aware of Angels

John Riley

February 7, 2020/in Aware of Angels, Blog, Rare, Rare Disease Day, Undiagnosed /by Season

John Riley-10 Months Old

Undiagnosed

USA

UtahRare/RUN/Aware of Angels 2018 Photo Project.

March 8, 2018/in aHUS, Aware of Angels, Aware of Angels-A Photography Project, Blog, Ehlers-Danlos, Ehlers-Danlos Syndrome type 9 (Occipital Horn Syndrome), Fibrous Dysplasia, Herniated disc and degenerative disc disease, IgA immune deficiency, Our Angels, Periodic Paralysis, Portrait Galleries, POTS: Postural Orthostatic Tachycardia Syndrome, Rare, Rare Disease Day, RUN, Undiagnosed, Utah Rare /by Season

UtahRare/RUN/Aware of Angels 2018 Photo Project

Summer-Undiagnosed Rare Disease

March 8, 2018/in Aware of Angels, Blog, Dysautonomia, Ehlers-Danlos, Herniated disc and degenerative disc disease, IgA immune deficiency, Limited Autonomic Neuropathy, MCAS (Mast Cell Activation Syndrome), Our Angels, Portrait Galleries, POTS: Postural Orthostatic Tachycardia Syndrome, Rare, Rare Disease Day, RUN, Undiagnosed, Utah Rare /by Season

Summer

IgA immune deficiency

POTS (Postural Orthostatic Tachycardia Syndrome)

Dysautonomia

Limited Autonomic Neuropathy

MCAS (Mast Cell Activation Syndrome)

A Herniated disc and degenerative disc disease

and still testing….

Michelle-Fibrous Dysplasia, Ehlers-Danlos, Idiopathic Hypereosinophilia

March 8, 2018/in Aware of Angels, Aware of Angels-A Photography Project, Blog, Ehlers-Danlos, Fibrous Dysplasia, Idiopathic Hypereosinophilia, Our Angels, Rare, Rare Disease Day, RUN, Undiagnosed, Utah Rare /by Season

Michelle

Fibrous Dysplasia

Ehlers-Danlos

Idiopathic Hypereosinophilia

Still Testing…