John Riley-10 Months Old
John Riley-10 Months Old
Hey!!! NFL (as well as college) Football camps have started and the seasons first games are happening soon! Who is excited and who doesn’t love football and… what does football have to do with us!?! We never thought we would ever have anything to do with the NFL but… we have an exciting fundraiser in the works thanks to Isaac Asiata – @asiatafive4 of the Miami Dolphins @miamidolphins
Isaac has generously donated his custom made @solesbysir cleats to our cause to be used in an upcoming auction. Funds raised will be used to raise awareness for rare and undiagnosed disease and providing special photo shoots for some incredible patients. Before the Dolphins, Isaac played college ball at the University of Utah. We are Local to Utah and know what a generous heart Isaac has and we are thrilled to be working with him on this. To learn more about our cause and our 501c3 organization visit awareofangels.org – insta @awareofangels – or Aware of Angels on Facebook then stay tuned for more details coming very soon! This is going to be so much fun! #isaacasiata #miami #miamidolphins #phinsup #NFL #utahfootball #utes #uofu #uofufootball #raredisease #awareofangels #undiagnosed #raregenetics #findacure #awareness #rareadvocates #careaboutrare #oneinamillion #universityofutah #universityofutahfootball #nflcollectibles #athletics #athletesdoinggood #nonprofit #charitablecause #solesbysir @nfl @nflnetwork
Cleidocranial dysplasia (CCD) is a skeletal disorder characterized by open fontanelles (soft spot), small or absent clavicles (collarbones), and multiple dental abnormalities. It is a genetic birth defect caused by mutations to the RUNX2 gene. It occurs one in every one million births. It can be passed from an affected parent or can be a random mutation. Manifestations may vary among individuals in the same family.
Many attendees had never met anyone else with their diagnosis and it was an emotional event for all. I absolutely loved taking these portraits and even though they were fast, and in a hotel conference room, we got some amazing images that I hope to share a few with you soon!
These individuals are one in a million. If you or someone you know have symptoms or a diagnosis of
Cleidocranial Dysplasia you should find CCD Smiles on Facebook and check out their website at ccdsmiles.org
This year the Children’s Craniofacial Association (CCA) held it’s annual retreat and educational symposium in Salt Lake City, Utah. I had the opportunity to go and photograph the last night of their retreat which involved dinner and dancing…and dancing…and dancing! This was the funnest group I have ever been with and if this is a organization and/or retreat that would benefit you, a family member or friends I highly recommend that you get involved-follow their information on Facebook, website https://ccakids.org/ newsletter, and their blog! http://www.ccakidsblog.org/
Children’s Craniofacial Association is a national, 501(c)3 nonprofit organization, headquartered in Dallas, Texas. Nationally and internationally, CCA addresses the medical, financial, psychosocial, emotional, and educational concerns relating to craniofacial conditions. CCA is an organization that umbrellas many different craniofacial diagnoses.
A craniofacial disorder refers to an abnormality of the face and/or the head. Craniofacial differences can result from abnormal growth patterns of the face or skull, which involves soft tissue and bones. A craniofacial condition may include disfigurement brought about by birth defect, disease or trauma.
Attendee’s had an amazing time while connecting with old friends and making new ones. The CCA website is full of great information and contact info if you have questions – link: https://ccakids.org/ Thank you CCA for a wonderful opportunity!