IgA immune deficiency
POTS (Postural Orthostatic Tachycardia Syndrome)
Limited Autonomic Neuropathy
MCAS (Mast Cell Activation Syndrome)
A Herniated disc and degenerative disc disease
and still testing….
Diagnosis: von Hippel-Lindau
We are so thrilled and honored to have another RARE portrait gallery up! Recursion Pharmaceuticals has installed portraits of 18 RARE and Undiagnosed Angels in their new workspace. Employees wanted this installation to remind them everyday why they are doing what they are doing and who they are doing it for! It is motivating and inspiring for them and a goal achieved for us! We want to get these beautiful faces in front of those who can make a difference for them. Their portraits are a reminder of who is living with rare and undiagnosed disorders-that they are beautiful, full of personality, love and they deserve the best quality of life possible.
Rare and Undiagnosed families were invited to attend an official unveiling of this gallery and share their stories with Recursion as well as mingle with other families in the community. This was a great event and we are so grateful for their hospitality.
“We combine innovative biological science with machine learning and deep learning to discover new therapeutic opportunities for rare genetic diseases – or any disease that we can model in cells. Founded in 2013, we are making strides towards our ambitious goal of treating 100 diseases in just 10 years.” http://www.recursionpharma.com/