Rare Disease Day Archives - Page 3 of 4 - Aware of Angels

Randy-Ehlers-Danlos Syndrome type 9 (Occipital Horn Syndrome)

March 7, 2018/in Aware of Angels-A Photography Project, Blog, Ehlers-Danlos Syndrome type 9 (Occipital Horn Syndrome), Our Angels, Rare, Rare Disease Day, RUN, Utah Rare /by Season

Randy

Diagnosis: Ehlers-Danlos Syndrome type 9 (Occipital Horn Syndrome)

Stockton-Undiagnosed

February 28, 2017/in Aware of Angels-A Photography Project, Blog, Our Angels, Rare, Rare Disease Day, Undiagnosed, Utah Rare /by Season

Stockton: Age 2

Diagnosis: Undiagnosed

USA

Ethan-Atypical Hemolytic Uremic Syndrome (aHUS)

February 28, 2017/in aHUS, Atypical Hemolytic Uremic Syndrome, Blog, Our Angels, Rare, Rare Disease Day, Utah Rare /by Season

Ethan: Age12

Diagnosis: Atypical Hemolytic Uremic Syndrome (aHUS)

USA

Layla-548kb duplication at band 15q26.3

February 27, 2017/in 548kb duplication at band 15q26.3, Aware of Angels-A Photography Project, Blog, Our Angels, Rare, Rare Disease Day, Utah Rare /by Season

Layla: Age 4

Diagnosis: 548kb duplication at band 15q26.3

USA

Ciara-Eosinophilic Fasciitis, Linear Scleroderma, Sjogren’s Syndrome

February 27, 2017/in Aware of Angels-A Photography Project, Blog, Eosinophilic Fasciitis, Linear Scleroderma, Our Angels, Rare Disease Day, Sjogren’s Syndrome, Utah Rare /by Season

Ciara Webster: Age 28

Diagnosis: Eosinophilic Fasciitis, Linear Scleroderma, Sjogren’s Syndrome

USA, Utah