Rare Disease Day Archives - Page 4 of 4 - Aware of Angels

Lucy-Sotos syndrome or Cerebral Gigantism

February 25, 2017/in Aware of Angels-A Photography Project, Blog, Cerebral Gigantism, Our Angels, Rare, Rare Disease Day, Sotos syndrome, Utah Rare /by Season

Lucy: Age 5

Diagnosis: Sotos syndrome or Cerebral Gigantism

USA

Debbie, Heather, Logan-Miller Syndrome, MS and

February 24, 2017/in Aware of Angels-A Photography Project, Blog, Miller Syndrome, Our Angels, Rare, Rare Disease Day, Utah Rare /by Season

Debbie Jorde: Multiple Sclerosis (MS) Mother to Heather & Logan

Heather Madsen: Miller Syndrome, ADHD, Autism, ciliary dyskinesia (PCD), Hearing Impairment

Logan Madsen: Miller Syndrome, ASD, ciliary dyskinesia (PCD), OCD, PDDNOS

USA