Rare Disease Day 2017 Archives - Aware of Angels

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Stockton-Undiagnosed

February 28, 2017/in Aware of Angels-A Photography Project, Blog, Our Angels, Rare, Rare Disease Day, Undiagnosed, Utah Rare /by Season

Stockton: Age 2

Diagnosis: Undiagnosed

USA

Ethan-Atypical Hemolytic Uremic Syndrome (aHUS)

February 28, 2017/in aHUS, Atypical Hemolytic Uremic Syndrome, Blog, Our Angels, Rare, Rare Disease Day, Utah Rare /by Season

Ethan: Age12

Diagnosis: Atypical Hemolytic Uremic Syndrome (aHUS)

USA

Layla-548kb duplication at band 15q26.3

February 27, 2017/in 548kb duplication at band 15q26.3, Aware of Angels-A Photography Project, Blog, Our Angels, Rare, Rare Disease Day, Utah Rare /by Season

Layla: Age 4

Diagnosis: 548kb duplication at band 15q26.3

USA

Lashay-Undiagnosed

February 26, 2017/in Aware of Angels-A Photography Project, Blog, Our Angels, Rare, Rare Disease Day, Undiagnosed, Utah Rare /by Season

Lashay: Age 16
Diagnosis: Undiagnosed (POTS, Chronic Illness)
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Lucy-Sotos syndrome or Cerebral Gigantism

February 25, 2017/in Aware of Angels-A Photography Project, Blog, Cerebral Gigantism, Our Angels, Rare, Rare Disease Day, Sotos syndrome, Utah Rare /by Season

Lucy: Age 5

Diagnosis: Sotos syndrome or Cerebral Gigantism

USA