Rare Disease Day Archives - Page 4 of 5 - Aware of Angels

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Lucy-Sotos syndrome or Cerebral Gigantism

February 25, 2017/in Aware of Angels-A Photography Project, Blog, Cerebral Gigantism, Our Angels, Rare, Rare Disease Day, Sotos syndrome, Utah Rare /by Season

Lucy: Age 5

Diagnosis: Sotos syndrome or Cerebral Gigantism

USA

Jaderee-Eosinophilic Colitis

February 27, 2016/in Aware of Angels-A Photography Project, Blog, Eosinophilic Colitis, Our Angels /by Season

Jaderee: Age 17

Diagnosis: Eosinophilic Colitis

Country: USA

Calen-Deletion/Duplication Chromosome 19

February 26, 2016/in Aware of Angels-A Photography Project, Blog, Deletion/Duplication Chromosome 19, Our Angels, Undiagnosed /by Season

Calen: Age 15 Diagnosis: Undiagnosed with a deletion and duplication on chromosome 19 Country: USA Read more →

Michael-Undiagnosed-with multiple diagnosis including dysautonomia….

February 22, 2016/in Aware of Angels-A Photography Project, Blog, Dysautonomia, MCAD, Our Angels, POTS: Postural Orthostatic Tachycardia Syndrome, Undiagnosed /by Season

Michael:Age 13

Diagnosis: undiagnosed-with multiple diagnosis including dysautonomia….

Country: USA

Hailey-Undiagnosed Chronic Daily Migraine, POTS, Chronic Fatigue, Fibromyalgia.

February 19, 2016/in Aware of Angels-A Photography Project, Blog, Our Angels, POTS: Postural Orthostatic Tachycardia Syndrome, Undiagnosed /by Season

Hailey: Age 15

Diagnosis (Multiple): Undiagnosed Chronic Daily Migraine, POTS: Postural Orthostatic Tachycardia Syndrome, Chronic Fatigue, Fibromyalgia.

Country: USA