Diagnosis: 16q24.3 Deletion, 7q36.3 Duplication, TSC2
Undiagnosed Rare Disease
Diagnosis: Ehlers-Danlos Syndrome type 9 (Occipital Horn Syndrome)
A HUGE thank you to everyone who participated and supported Aware of Angels during this fundraiser and all other times! xoxo
Calling on everyone!! 🙂 We have officially started a Crowdrise fundraiser for the next 30 days. We have families and children in over 15 united states and 3 countries that want us to come out for a photography session and to participate in our global awareness project this year! This will be somewhat low-key on our part, mostly due volunteer availability for posting and sharing and this is why we need your help! We need to raise a lot of funds!! This is not just for individuals, we would love corporate sponsorship as well. Funds do not have to be sent through crowdrise, feel free to contact us for another option. We are a registered 501(c)3 nonprofit organization so your donations may be tax deductible. Please consider donating to a very worthy cause and sharing about the fundraiser & what it means to you. These children we photograph and share about are either undiagnosed or have a rare medical condition. We need to raise awareness for them as a beautiful individual as well as their diagnosis (or the need for one). Awareness will make connections for these families on a personal level as well as with in the medical industry. To read more about this, here is the link for the fundraiser: https://www.crowdrise.com/o/en/team/raising-awareness-and-providing-memories-for-children-with-rare-medical-conditions and here is the link for the crowdrise AOA page: https://www.crowdrise.com/aware-of-angels Thank you!! xo
Both pages have beautiful video’s of our families and a special thanks to Joe Rawlins and Matt Eastin for creating them for us.